The European Association for the ADNP syndrome, ADNP in short, was founded in Belgium in 2025 by parents of children affected by the ADNP Syndrome.

Our ambition is:

To develop a global network of patients and families affected by the ADNP syndrome to build bridges within the ADNP Community worldwide, share experiences, and valuable ADNP related information that practically help ADNP patients and their families on a daily basis;
To raise awareness in the general public about the ADNP Syndrome and promote dialogue among all stakeholders interested in ADNP syndrome (e.g. families, scientific community, public authorities, universities, private sector) to facilitate information sharing and create opportunities for enhanced collaboration;
To promote all actions aimed at improving the well-being and development of persons carrying a mutation of the ADNP gene or an associated syndrome;
To support scientific research in the field of the ADNP-gene and associated syndromes through fund raising campaigns and lobbying with relevant Public at National, European, and global Level;
To defend the rights to inclusion in society of those affected and fight against all forms of discrimination against them.
...To support anything that would facilitate the development of a treatment for the ADNP Syndrome!